We’re in the process of reaching out to members to see how to best keep everyone updated and get their thoughts on information and support.
Looking directly at membership benefits over time by working with partners, securing charitable funding and developing the charity to meet the challenges of 2024 and beyond.
Facilitating and organising a range of community events, large and small, physical and online to allow us to reach everyone across the UK – discussing a wide range of topics on living with Stickler Syndrome.
Become part of the team by offering your services or support and help us to meet objectives as we grow and build our Stickler Syndrome community. Just drop us a message at firstname.lastname@example.org with a little bit of background info so we can get a good idea of where you might best help.
Watch this space for information on membership as we move forward… we’re working on it!