By clicking “Accept All Cookies”, you agree to the storing of cookies on your device to enhance site navigation, analyze site usage, and assist in our marketing efforts. View our Privacy Policy for more information.

What's new?

14 June, 2024

The June edition of our 'Briefs' e-Newsletter… will be mailed on, or about, Friday 21 June. As well as some unexpected photographs, we have an offer on some branded golf brollies this month. If you're not already subscribed, you can sign-up on the About page of this website. If you have subscribed and haven't received your email, it will have come from a Mailchimp mailing list, so please check your Junk/Spam folder in case it has slipped into there.

Are you visiting Clinic 14… at Addenbrooke's in the near future? We've been busy brightening up the waiting areas as part of the NHS England review actions. There's a lot of colour and fun for the children (plus some giveaways), but our community characters are designed to represent all of us in a fun way, so we hope it puts a smile on people's faces during their visits. You might even spot someone you know in the character set?

Requests for information leaflets… about the charity have been met and these are being printed up to be made available to new patients at the Stickler Clinic at Addenbrooke's, and as part of our wider awareness initiatives. Feel free to ask if you'd like one.

The September 2024 Conference…
pre-registration form has now expired, but once the Priority Ticketing window has closed at the end of June for everyone who completed the form, remaining ticket availability will be notified on this page and through our social media channels. Watch out for future announcements from the beginning of July. As the programme builds, this is looking like a cracker of an event!