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What's new?

17 May, 2024

Our new 'Briefs' e-Newsletter is launched… if you haven't already subscribed you'll have missed the first edition but you can be on the mailing list for the June edition by subscribing on the About page of this website. Remember, the e-Newsletter will have articles and offers going forward which may not appear elsewhere.

If you have subscribed and haven't received your email, it will have come from a Mailchimp mailing list, so please check your Junkmail folder in case it has slipped into there.

The venue for our September 2024 Conference is…
Newnham College, Sidgwick Avenue, Cambridge CB3 9DF.  And what a great venue it is... great open and relaxing spaces, superb facilities, and we're working on having some excellent UK-wide content for the 2-day programme. Delegate numbers will be limited so hurry and visit the Conference page under ‘Membership’ on this website to pre-register your interest as soon as possible. The programme and ticketing release isn't far away, and those on the pre-register list will be the first to get the news.

The 2025 London Marathon
already looks like breaking record numbers for applicants. Sunday, 27 April is the big day, so there's almost a whole year to get in shape. The charity has limited places to fill, and CRunCH will again be managing our places. We'd love to know your Stickler Syndrome story and why you'd like to take part in this amazing event, so drop us an email at as we start the selection process with CRunCH for 2025.

Our 'Children and Young People in Education' documents are now available on the About > Downloads page. A big "Thank You" to everyone involved... let's see how this is received by education settings and families. And don't forget to give us your feedback because this is how we can improve things in future revised versions. You'll find a 5-page document, a 1-page 'Key Facts' poster, and a guide on how these can be shared with teaching professionals across different settings.