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What's new?

25 February, 2024

Save The Date... the conference is back!
Our 2024 Autumn Conference will be held over Friday, 20 September and Saturday, 21 September. Watch out for this web page and social media for announcements about pre-registration to register your interest in attending the conference. We can then keep you up-to-date on the programme and ticketing.

Our new 'Downloads' page... starts off with three colourful posters for you to print out and get up onto noticeboards wherever you can. We have some great runners in the London Marathon this year, so let's really get behind them - we'll be spreading awareness at the same time! We'll be adding further downloads as they are developed, so please return to this area for other resources as we release them.

Two of our trustees... met up with Conrad Hughes in Worthing for a relaxed lunch, presenting him with a retirement gift of beautiful Waterford crystal glasses and decanter, and a bottle of his favourite Calvados. We were sure to let Conrad know about the kind contributions towards his gift by people in the Stickler Syndrome 'community'. We all hope that he enjoys a peaceful retirement from the charity and thank him massively for his long-term contribution, along with his late wife, and the charity's original founder, Wendy.

See 'Next Steps' under the 'About' menu too.

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