Get to know the runners...

SUNDAY, 27 APRIL... sees the return of the London Marathon and this year looks like breaking all records to become the biggest of its kind in the world.
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So who's running for us and what are their stories?
In alphabetical order, at the top we have Alice for her second year in the event; then Catherine; brothers Charlie and Sam; Chris; and Samantha.

Each one has a strong connection with Stickler Syndrome through family members, and they're all motivated to help the charity with research, awareness and support by taking part is this iconic event.

Their stories resonate with many of us, and you can find out more by checking out their Just Giving pages from the links above (without any obligation).
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How can we support them?
Firstly, we can't keep asking the same people to support fundraising but we want to share and celebrate their efforts.

What we can do is print out or share one of our 2025 London Marathon posters on the Downloads page of this website. These posters can be displayed in places of work and leisure; they might even get a donation but, if not, they're sure to get noticed with the bright colours and strong messaging.

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Check out our updated highlighted events... on the Events page of this website. These are spread right across all regions of the UK and, with the warmer weather coming up, it's a fantastic opportunity to get out and about and meet others from your area.

Getting together... This year we have lots of fun runs for families and the kids... a lot of the inflatable fun runs start from 5 years of age - and you don't need to get wrapped up in fundraising (unless you really want to).

We weren't able to get the kids together at the 2024 Conference, but this has been set up to give families and children the opportunity to meet each other informally at fun events across the UK (both as participants and as spectators).

And with fundraising... for the more adventurous there's the filthy fun of the Tough Mudders, various distance runs from 5k to Marathons, Cycling, Swim, and even the chance to get a Bungee Jump off the bucket list! For some of these the charity will pay the registration fees upfront and we're happy to set fundraising targets with you instead.‍‍