By clicking “Accept All Cookies”, you agree to the storing of cookies on your device to enhance site navigation, analyze site usage, and assist in our marketing efforts. View our Privacy Policy for more information.

Privacy Preference Center

When you visit websites, they may store or retrieve data in your browser. This storage is often necessary for the basic functionality of the website. The storage may be used for marketing, analytics, and personalization of the site, such as storing your preferences. Privacy is important to us, so you have the option of disabling certain types of storage that may not be necessary for the basic functioning of the website. Blocking categories may impact your experience on the website.

Reject all cookies Allow all cookies

Manage Consent Preferences by Category

Essential

Always Active

These items are required to enable basic website functionality.

Marketing

Essential

These items are used to deliver advertising that is more relevant to you and your interests. They may also be used to limit the number of times you see an advertisement and measure the effectiveness of advertising campaigns. Advertising networks usually place them with the website operator’s permission.

Personalization

Essential

These items allow the website to remember choices you make (such as your user name, language, or the region you are in) and provide enhanced, more personal features. For example, a website may provide you with local weather reports or traffic news by storing data about your current location.

Analytics

Essential

These items help the website operator understand how its website performs, how visitors interact with the site, and whether there may be technical issues. This storage type usually doesn’t collect information that identifies a visitor.

Confirm my preferences and close

What's new?

6 December, 2023

JustGiving for Conrad's retirement from the charity
‍Conrad Hughes (Trustee and Hon. Treasurer), along with his late wife and charity founder Wendy, has been ‘at the helm’ for over 30 years.

Conrad has played a vital role in helping get the charity back up on its feet, making the handover as smooth as it could be after some understandably difficult transitional times in recent years.

As a gesture of our appreciation, the charity would like to present Conrad with a suitable gift to say “Thank you” for his, and Wendy’s, contribution to our community – without which there wouldn’t be a Stickler Syndrome UK to get back onto its feet.

We have set up a JustGiving page for anyone who would like to contribute to our gift to Conrad.

https://www.justgiving.com/crowdfunding/ConradHughes?utm_term=V7EeXd99X

I want to know more about the charity

I want to know more about Stickler Syndrome

I have an emergency