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As a charity, donations and fundraising are our financial lifeline.
Thank you :)
How you can help
We need you to spread the awareness and get involved – just the occasional cost of that cup of coffee and a cake will really help us to provide key support for our UK Stickler Syndrome community.
Donate straight to our Stickler Syndrome Charitable Trust account
Sort code: 30-93-74
Account number: 85510868
Event fundraisers
A big thank you!
Every donation to the charity, however small, helps build better support, awareness and understanding for us all. Your generosity is greatly appreciated.
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It is understood that…
Approximately 9,000 people, across the UK, have Stickler Syndrome from birth. Most of that 9,000 are not aware that they have it, and are not aware of the risks associated with this.
With the average size of a UK family being 2.5 people – it is likely that we have something like 22,500 people in the UK whose lives are affected by Stickler Syndrome. Our vision, going forward, is to provide support and information for that whole community.
