What's new?

COME RAIN OR SHINE... Belle and Ian finished 'Santa in the City' on Thursday, 5th December, in their festive outfits with hundreds of other festive fun runners.

As you can see, it was a pretty wet night but they drove up to London from Maidstone... parked up in the Barbican Centre and walked over to the starting line in Paternoster Square.

No surprise, the star attraction on this wet and windy night was Belle in her Figgy Pudding kit, so she gets the medal for pulling Ian around the course without missing a single puddle [or scrap of dropped fast food] along the way!
‍
Ian and Belle's wet and windy run raised over £1000 for the charity
‍
‍We're still open to adding to the total with a few more donations promised, but this run means that we can proceed with our contributions to essential research initiatives and that we can get our pilot project underway in bringing a smile to the faces of children with Stickler Syndrome who are attending Addenbrooke's for operations (with a view to evaluation for a wider roll-out in 2025).

That's the charity events for 2024... we now look forward into 2025 with a whole host of events to have some fun with. Check out the Events page with our advertised venues and also your own area for what's available through the year all around the UK and elsewhere.
‍
==

Want to save on postage this Christmas?... Just download one of our festive online greetings card scenes as a PNG file from our Downloads page. You can choose this instead of costly postage on greetings cards by adding to your social media or emails - and let your friends know that you're donating the money instead to the Stickler Syndrome UK charity. And an added bonus of not having writer's cramp this year!

This year's funds from the PNG greetings cards will be going towards the 2025 Wellbeing and Mental Health Support pilot project, so you know you'll be doing something really worthwhile for people with Stickler Syndrome who are going through a difficult time.

==

Don't forget to check out the YouTube link at the top right of the website pages... our 2024 Conference presentations are starting to get uploaded as we work through the necessary approvals processes. It will be a steady flow because we're also connecting these videos with planned actions and activities through 2025.

If you have a YouTube account, please don't forget to subscribe while you're in there - this all goes to help in the future as we build up numbers.

==

We're still plugging away on Give as you Live. Well done to all of you who have signed up recently, we've seen some FREE DONATIONS starting to come in from over 6,000 contributing online retailers.

This is a great way to donate to a charity (or multiple charities) of your choice without it costing you anything... maybe just an extra little click on your browsing.
‍
Step 1 - Sign-up at www.giveasyoulive.com/how-it-works
Step 2 - Choose your charity/charities to support
Step 3 - Share with your friends and see how many you can get to join you in this great initiative.

And if you've signed up previously and not really used it, how about having another go at the link above (there's a Help button at the bottom of their web page if things aren't clear). Our top subscriber in the past 12 months has raised £89.

This is great for business purchases too, especially where the seemingly small percentages can amount to larger donations.

‍Nearly £34 million raised for UK charities to date. Feefo Platinum Award Winner for 2024.
‍‍