By clicking “Accept All Cookies”, you agree to the storing of cookies on your device to enhance site navigation, analyze site usage, and assist in our marketing efforts. View our Privacy Policy for more information.
Our social media volunteer team are keeping content refreshed, and we're due to release an e-Newsletter with a different angle on content (this will now be during May as we start to work on the content and compile the list of subscribers).
Pre-registration for this September's 2-day conference is now available here (Conference) and our volunteer conference team has secured the venue, fairly central to Cambridge, while they continue to work on the exciting full 2-day programme.
We'll be working with the team at Addenbrooke's to brighten up the areas for the Stickler clinic. This is now scheduled for June and is another initiative from the charity.
More work on 'Children and Families' as the charity starts to negotiate terms for exciting sponsored Family Fun Days across the UK and EIRE.
Initial work has begun on looking into more MSK and Physio support, both with possible resource and with physio factsheets.
