A summary of all the latest news from the charity...
12 June, 2025
SETTING OUR PRIORITIES FOR OBJECTIVES THROUGH 2025/26... "thank you" to the 100 people who have participated so far in the survey to help the charity prioritise its objectives for the coming 12-18 months.
Just a few minutes of your time scoring objectives, and the chance to add some additional feedback anonymously.
Please don't miss this opportunity to have your say in how we take things forward.
THE INFLATABLES 2.5k FUN RUN at Brands Hatch saw people and families coming together in the Kent countryside.
This is now featured as a short video clip on social media and can be viewed, along with the 2026 London Marathon event and the Barcelona Half-Marathon clips, on our You Tube channel.
All our offered events can be found on our Events page and are there for everyone to enjoy across all regions of the UK.
And lets not forget that Martin Snead from the Highly Specialised Stickler Syndrome Service at Addenbrooke's in Cambridge is about to partake in a challenging open-water swim.
This time it's the Bantham Swoosh... so if you didn't get a chance to support him for last September's swim, here's the opportunity to leave a message of support for his training for this event following recent hip surgery.
Martin Snead will be backed up by daughter, Charlotte, who will also be taking up the challenge of the 'swoosh'.
All donations are going towards a ring-fenced cause for further vitreoretinal research. Find out more here!
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Applications to run the 2026 London Marathon for Stickler Syndrome UK are still in the initial phase. These can be made through our the charity's long-term organisers for this event, CRunCH, but get in soon because confirmations tend to be made in early part of the summer, usually just after the public ballot results have been released.
