Welcome to our Web site!

We hope this site provides a starting point for people wanting information on Stickler syndrome and easy to follow instructions for accessing other sources of information on Stickler syndrome on the Internet.

The SSSG is a UK based organisation. Other national support groups can be found through our web links page

The SSSG is non profit making organisation that provides information for families, healthcare and medical professionals affected by or caring for people with Stickler Syndrome. We do not currently receive any government funding and rely totally on the generosity of donations. If you have found this site helpful, please consider sending us a donation via the Bmycharity website.

The SSSG cannot comment or advise on individual professionals or case histories.

Information for professionals can be found on our Professional'spage.

We have kept the site layout simple and hopefully easy to read for those who are visually impaired. If you have any comments on this site please email them to Wendy Hughes at the address below.

This site is created and maintained by the Stickler Syndrome Support Group. About the group

New Contact Information (as from November 2009):

Stickler Syndrome Support Group
PO Box 3351
LITTLEHAMPTON
BN16 9GB

Wendy Hughes
Founder and Hon President
Tel 01903 785771
email: info@stickler.org.uk